Rised:
2024 year: 2 122 767 ₴14 years: 58 458 610 ₴
A boy who lives with a smile
Dear friends!
Fundraising to help Ruslan Shcherbakov has been closed due to the child’s relocation and continuation of treatment abroad.
If you do not object, all funds raised will be used to treat other wards of the Fund, whose stories are now published on the site.
Eleven-year-old Ruslan Shcherbakov, who was diagnosed with SMA from birth, needs expensive Eurisdi medication.
In the early photos, Ruska is a beautiful, fair-haired child with clear eyes and a constant smile, a boy - a sun, the only and infinitely beloved child in the Shcherbakov family. And, looking at the photo, it is unbelievable that this happy and caressed by mom and dad baby can be a sick child. However ... Once the diagnosis of Russia voiced by a doctor became a sentence for the family, which cannot be worse.
It all happened when Ruslana was eight months old: Svetlana, increasingly worried that her cheerful and active son is not sitting, crawling, and somehow strangely struggling, trying to turn from belly to back, began to bypass all the doctors. But, everyone agreed with her that the baby is completely healthy, and only, like most boys, lazy to develop at the proper pace.
But when his mother showed Ruslan to the most experienced Zaporizhzhya doctor Viktor Slavkin, he first uttered this terrible thing: "spinal muscular atrophy." And to alleviate the brutal blow, he added: "God forbid I was wrong" paragraph. Already in the car, she burst into tears and screams, so desperate and strong that she had to stop and wait for the first wave of insane pain to go away, and consciousness could accept this unbearable fact: their son is terminally ill and his life is two or three years. ... In 2011, medicine gave a disappointing prognosis.
And the doctor then advised the parents of Russia: do not delay, register a disability, you will need money, a lot of money, a lot of money ... But at first everything seemed correct: the baby grew up an active, mobile and very positive child, did not cry, learned to speak early , already in two years knew many poems, actively played. Until, at the age of three, he caught a cold and suddenly became very ill, on the verge of life and death: a cold, like any infection, increases the development of atrophy a hundredfold, and in the case of Ruslan, unfortunately, this is exactly what happened.
Bronchitis instantly turned into pneumonia, but for the first time. However, two months later the disease returned and struck with redoubled force: Rusya was taken to the intensive care unit, from which he returned completely different… Svetlana and now with trembling in her voice remembers how she was not allowed to visit her son for three days, and still allowed to enter , she did not recognize her baby: his body did not move. Her boy, who three days ago rode the carousel on his own, just holding his mother’s hand, could not move now. And, it’s scary to even imagine - the child was hungry. As it turned out, all this time no one tried to save him and did not feed him. And the mother was told that it would be more humane for everyone to allow the child to leave, so that the parents would not be tortured and would not suffer.
Eight years have passed since then. Russia lives. Thanks to people in white coats, but also to other people, not indifferent resuscitators, nurses. A low bow to them! And, of course, thanks to his mother. Then, at that fatal moment for her son, Svitlana did everything possible and impossible to pick up the child and transfer her to another Zaporizhia hospital, which she still remembers with great warmth. Yes, they came out with a tracheostomy, and Russia could not speak for another year. But in order not to live permanently in intensive care, they needed their own ventilator, and they were able to buy it with the help of good and caring people. And all this paid off. Russia began to grow and gradually develop. Contrary to the standard for his illness, disappointing prognoses and a terrible diagnosis.
If all healthy people could enjoy life as Ruslan enjoys it! If you could appreciate what is usually given as easy as a given, and a child with spinal atrophy - so hard! And what Russia can and can do seems like a real miracle. The child learned to speak with a tracheostomy and from the age of seven is engaged in regular school, online. He finished elementary school with a letter of commendation as one of the best students, and gave his first "fee" - 500 hryvnias excellent - to his own medicine.
Thanks to her mother, Russia has mastered the Internet and is well versed in it, solves logical problems and plays chess, communicates with friends through the network and knows many "adult" poems. And he, like any boy, is drawn to sports and loves to "go crazy". And let instead of the bicycle at it - the electric cart, but also on it Rusik, happens, includes a turbo mode.
To all who sincerely pity her, Svetlana says no less openly: do not think it is impossible to live in anguish for all eleven years. Then a habit comes, and you perceive your son as an ordinary child who does not run, but lies down. All these years, the son for Svetlana - the center of their small family universe. In the literal sense of the word - the center. After all, the functional bed of Russia is in the center of their only completed and inhabited room in the house. And all these years the life of the whole family revolves around her with constant sanitization, massages, injections, procedures, training and other activities, which fill every day of the family.
But Ruslan’s illness has recently progressed. The boy’s weakness was growing, and it was catastrophically dangerous: the child’s freedom and all his social contacts directly depended on their mobility. After all, the boy still skillfully operated the phone and laptop, drove a wheelchair. In addition, Russia is no longer a child, and it is impossible to protect him from information about his illness, so the boy himself understands that if the disease progresses, he is in danger of complete immobility. But this cannot be allowed!
There is hope. On the first day, when parents were allowed to open accounts to raise funds for the innovative drug "Eurisdi", Svetlana opened an account. This recently invented drug has proven its effectiveness many times over, but in Ukraine only about sixty families receive it under the free access program from the manufacturer. Two hundred more families need it. Authorities promise to buy this drug and give it to the needy for free. But the prospect of getting it is postponed to next year, and the number of children who are guaranteed to get the desired access to the drug is still unknown. But Svitlana sincerely hopes that they will be lucky with Russia, and they will be among the lucky lucky ones.
And so far… When we managed to collect the first amount for one bottle, Svetlana immediately bought it and now we can talk about an almost instantaneous positive result: Russia began to speak louder, language became clearer, muscles strengthened, and he copes with his cart again . And this is a serious bid to win the progression of the disease. So there is reason to hope for more and dream. To dream that Russia will sit on its own, swallow, move, talk, and continue to study in a regular school, in short, will live fully. And to the question: "How is he doing?" will answer his brand: "Excellent"!
Russian medicine must be taken for life, but my mother can not stand the endless marathon of fundraising. We hope that the state will still provide such desirable and much-needed care to the families of people with spinal muscular atrophy. But it is extremely necessary to hold out until that moment. So today the salvation of Russia depends only on us and you. Vyacheslav Mykolayovych Kapusta
, Head of the Intensive Care Unit of the Zaporizhzhya City Children’s Multidisciplinary Hospital №5: But the drug is expensive: one bottle costs about 10 thousand dollars, and treatment is lifelong. The cost of Ruslan’s drug " Evrisdi "
260 900 hryvnias.
Dear friends! If you decide to help Ruslan Shcherbakov , don’t be embarrassed by the price of salvation. Any of your donations will be gratefully accepted. You can help by sending an SMS with the word GOOD to the number ####. The cost of SMS-messages is UAH 9. You can send a donation by bank transfer to the Fund. All the necessary details are in the Fund. You can also use our electronic payment system by making donations from a credit card or electronic cash, including from abroad, as well as transfer Ruslan ’s help through a peer-to-peer payment system by transferring bitcoins to the Fund’s wallet: 1UFondJDKbIJYVgg
Fundraising to help Ruslan Shcherbakov has been closed due to the child’s relocation and continuation of treatment abroad.
If you do not object, all funds raised will be used to treat other wards of the Fund, whose stories are now published on the site.
Eleven-year-old Ruslan Shcherbakov, who was diagnosed with SMA from birth, needs expensive Eurisdi medication.
In the early photos, Ruska is a beautiful, fair-haired child with clear eyes and a constant smile, a boy - a sun, the only and infinitely beloved child in the Shcherbakov family. And, looking at the photo, it is unbelievable that this happy and caressed by mom and dad baby can be a sick child. However ... Once the diagnosis of Russia voiced by a doctor became a sentence for the family, which cannot be worse.
It all happened when Ruslana was eight months old: Svetlana, increasingly worried that her cheerful and active son is not sitting, crawling, and somehow strangely struggling, trying to turn from belly to back, began to bypass all the doctors. But, everyone agreed with her that the baby is completely healthy, and only, like most boys, lazy to develop at the proper pace. But when his mother showed Ruslan to the most experienced Zaporizhzhya doctor Viktor Slavkin, he first uttered this terrible thing: "spinal muscular atrophy." And to alleviate the brutal blow, he added: "God forbid I was wrong" paragraph. Already in the car, she burst into tears and screams, so desperate and strong that she had to stop and wait for the first wave of insane pain to go away, and consciousness could accept this unbearable fact: their son is terminally ill and his life is two or three years. ... In 2011, medicine gave a disappointing prognosis.
And the doctor then advised the parents of Russia: do not delay, register a disability, you will need money, a lot of money, a lot of money ... But at first everything seemed correct: the baby grew up an active, mobile and very positive child, did not cry, learned to speak early , already in two years knew many poems, actively played. Until, at the age of three, he caught a cold and suddenly became very ill, on the verge of life and death: a cold, like any infection, increases the development of atrophy a hundredfold, and in the case of Ruslan, unfortunately, this is exactly what happened.
Bronchitis instantly turned into pneumonia, but for the first time. However, two months later the disease returned and struck with redoubled force: Rusya was taken to the intensive care unit, from which he returned completely different… Svetlana and now with trembling in her voice remembers how she was not allowed to visit her son for three days, and still allowed to enter , she did not recognize her baby: his body did not move. Her boy, who three days ago rode the carousel on his own, just holding his mother’s hand, could not move now. And, it’s scary to even imagine - the child was hungry. As it turned out, all this time no one tried to save him and did not feed him. And the mother was told that it would be more humane for everyone to allow the child to leave, so that the parents would not be tortured and would not suffer.
Eight years have passed since then. Russia lives. Thanks to people in white coats, but also to other people, not indifferent resuscitators, nurses. A low bow to them! And, of course, thanks to his mother. Then, at that fatal moment for her son, Svitlana did everything possible and impossible to pick up the child and transfer her to another Zaporizhia hospital, which she still remembers with great warmth. Yes, they came out with a tracheostomy, and Russia could not speak for another year. But in order not to live permanently in intensive care, they needed their own ventilator, and they were able to buy it with the help of good and caring people. And all this paid off. Russia began to grow and gradually develop. Contrary to the standard for his illness, disappointing prognoses and a terrible diagnosis.
If all healthy people could enjoy life as Ruslan enjoys it! If you could appreciate what is usually given as easy as a given, and a child with spinal atrophy - so hard! And what Russia can and can do seems like a real miracle. The child learned to speak with a tracheostomy and from the age of seven is engaged in regular school, online. He finished elementary school with a letter of commendation as one of the best students, and gave his first "fee" - 500 hryvnias excellent - to his own medicine. Thanks to her mother, Russia has mastered the Internet and is well versed in it, solves logical problems and plays chess, communicates with friends through the network and knows many "adult" poems. And he, like any boy, is drawn to sports and loves to "go crazy". And let instead of the bicycle at it - the electric cart, but also on it Rusik, happens, includes a turbo mode.
To all who sincerely pity her, Svetlana says no less openly: do not think it is impossible to live in anguish for all eleven years. Then a habit comes, and you perceive your son as an ordinary child who does not run, but lies down. All these years, the son for Svetlana - the center of their small family universe. In the literal sense of the word - the center. After all, the functional bed of Russia is in the center of their only completed and inhabited room in the house. And all these years the life of the whole family revolves around her with constant sanitization, massages, injections, procedures, training and other activities, which fill every day of the family.
But Ruslan’s illness has recently progressed. The boy’s weakness was growing, and it was catastrophically dangerous: the child’s freedom and all his social contacts directly depended on their mobility. After all, the boy still skillfully operated the phone and laptop, drove a wheelchair. In addition, Russia is no longer a child, and it is impossible to protect him from information about his illness, so the boy himself understands that if the disease progresses, he is in danger of complete immobility. But this cannot be allowed!
There is hope. On the first day, when parents were allowed to open accounts to raise funds for the innovative drug "Eurisdi", Svetlana opened an account. This recently invented drug has proven its effectiveness many times over, but in Ukraine only about sixty families receive it under the free access program from the manufacturer. Two hundred more families need it. Authorities promise to buy this drug and give it to the needy for free. But the prospect of getting it is postponed to next year, and the number of children who are guaranteed to get the desired access to the drug is still unknown. But Svitlana sincerely hopes that they will be lucky with Russia, and they will be among the lucky lucky ones.
And so far… When we managed to collect the first amount for one bottle, Svetlana immediately bought it and now we can talk about an almost instantaneous positive result: Russia began to speak louder, language became clearer, muscles strengthened, and he copes with his cart again . And this is a serious bid to win the progression of the disease. So there is reason to hope for more and dream. To dream that Russia will sit on its own, swallow, move, talk, and continue to study in a regular school, in short, will live fully. And to the question: "How is he doing?" will answer his brand: "Excellent"!
Russian medicine must be taken for life, but my mother can not stand the endless marathon of fundraising. We hope that the state will still provide such desirable and much-needed care to the families of people with spinal muscular atrophy. But it is extremely necessary to hold out until that moment. So today the salvation of Russia depends only on us and you. Vyacheslav Mykolayovych Kapusta
, Head of the Intensive Care Unit of the Zaporizhzhya City Children’s Multidisciplinary Hospital №5: But the drug is expensive: one bottle costs about 10 thousand dollars, and treatment is lifelong. The cost of Ruslan’s drug " Evrisdi "
260 900 hryvnias.
Dear friends! If you decide to help Ruslan Shcherbakov , don’t be embarrassed by the price of salvation. Any of your donations will be gratefully accepted. You can help by sending an SMS with the word GOOD to the number ####. The cost of SMS-messages is UAH 9. You can send a donation by bank transfer to the Fund. All the necessary details are in the Fund. You can also use our electronic payment system by making donations from a credit card or electronic cash, including from abroad, as well as transfer Ruslan ’s help through a peer-to-peer payment system by transferring bitcoins to the Fund’s wallet: 1UFondJDKbIJYVgg