Rised:
2024 year: 2 122 767 ₴14 years: 58 458 610 ₴
Alexander Mikhalchenko
COLLECTED 29,600 hryvnias. Wecpa Charitable Foundationcontributed UAH 29,600. The medicine was paid for and transferred.
When Sasha was 6 months old, he started having seizures. We were taken to the hospital by ambulance. After a complete examination and MRI, Sasha was diagnosed with Burneville’s disease, or tuberous sclerosis. A rare genetic disease in which benign tumors form in many organs and tissues. The polysystemic nature of the disorders generates a wide range of symptoms - brain damage, decreased intelligence; affected internal organs - kidneys, heart, lungs. One of the worst manifestations of this disease is epileptic seizures. They have to be treated with potent drugs that have many side effects. In addition, patients with tuberous sclerosis have a delay in mental development of varying severity.
We started Sasha’s treatment in Kyiv. At the Institute of Pediatrics and Obstetrics, the child was selected for anticonvulsant therapy, but the seizures persisted and were difficult to alleviate. Despite the daily attacks, Sasha started talking and walking, we were very happy, because children with this disease often lag behind in development.
Due to constant attacks, my son did not go to kindergarten and school. Any training is difficult for him, or not at all. Last summer, Sasha began to have severe convulsions, the child stopped walking at all and began to lose his sight. Having done an MRI and examination at the Institute of Neurosurgery. A.P. Romodanov, Sasha was diagnosed with a brain tumor and hydrocephalus. According to medical records, his son underwent surgery - brain shunting. After the operation period passed without complications. Currently, Sasha needs to undergo anticancer therapy with the drug Afinitor. This should be done due to the large size of the tumor to avoid the risk of re-operation. These drugs are expensive, and Sasha needs to take them every month, until the tumor subsides and the child is operated on. That is why I am asking you for help! Without this drug and surgery, Sasha will not be able to walk and will stop seeing at all.Svitlana Mykhalchenko, Kyiv region.
Head of the Department of Neurooncology of the Institute of Neurosurgery named after Academician AP Romodanova Verbova Lyudmila Nikolaevna: «Alexander has a tuberous sclerosis. The child needs long-term use of the drug "Afinitor" with the active substance "everolimus". This drug inhibits the growth of brain tumors, thereby saving the life of the child and will avoid life-threatening neurosurgery.
The cost of the necessary medicines for Sasha is 29,150 hryvnias, one course.
Dear friends! If you decide to help Alexander Mikhalchenko, do not be confused by the price of salvation. Any of your donations will be gratefully accepted. You can help by sending SMS SMS - messages UAH 9. with the word GOOD to the number ####. Cost You can send a donation by bank transfer to the Fund. All the necessary details are in the Fund. You can also use our electronic payment system by making a donation from a credit card or electronic cash, including from abroad.
Responded (took details): 1 fund
Helped by: 1 fund
Collected: UAH 29,600
March 26 , 2021 Thanks to the
help of our new friends BF We s pa , sixteen-year -old Sasha Mikhalchenko received the drug avoid risks during . This drug neurosurgery. Paid medicines will be enough for Sasha for two months.
Svetlana, Sasha’s mother, thanks everyone who responded for helping her son! Accept our gratitude, friends! We will definitely follow the fate of the boy.
When Sasha was 6 months old, he started having seizures. We were taken to the hospital by ambulance. After a complete examination and MRI, Sasha was diagnosed with Burneville’s disease, or tuberous sclerosis. A rare genetic disease in which benign tumors form in many organs and tissues. The polysystemic nature of the disorders generates a wide range of symptoms - brain damage, decreased intelligence; affected internal organs - kidneys, heart, lungs. One of the worst manifestations of this disease is epileptic seizures. They have to be treated with potent drugs that have many side effects. In addition, patients with tuberous sclerosis have a delay in mental development of varying severity.
We started Sasha’s treatment in Kyiv. At the Institute of Pediatrics and Obstetrics, the child was selected for anticonvulsant therapy, but the seizures persisted and were difficult to alleviate. Despite the daily attacks, Sasha started talking and walking, we were very happy, because children with this disease often lag behind in development.
Due to constant attacks, my son did not go to kindergarten and school. Any training is difficult for him, or not at all. Last summer, Sasha began to have severe convulsions, the child stopped walking at all and began to lose his sight. Having done an MRI and examination at the Institute of Neurosurgery. A.P. Romodanov, Sasha was diagnosed with a brain tumor and hydrocephalus. According to medical records, his son underwent surgery - brain shunting. After the operation period passed without complications. Currently, Sasha needs to undergo anticancer therapy with the drug Afinitor. This should be done due to the large size of the tumor to avoid the risk of re-operation. These drugs are expensive, and Sasha needs to take them every month, until the tumor subsides and the child is operated on. That is why I am asking you for help! Without this drug and surgery, Sasha will not be able to walk and will stop seeing at all.Svitlana Mykhalchenko, Kyiv region.
Head of the Department of Neurooncology of the Institute of Neurosurgery named after Academician AP Romodanova Verbova Lyudmila Nikolaevna: «Alexander has a tuberous sclerosis. The child needs long-term use of the drug "Afinitor" with the active substance "everolimus". This drug inhibits the growth of brain tumors, thereby saving the life of the child and will avoid life-threatening neurosurgery.
The cost of the necessary medicines for Sasha is 29,150 hryvnias, one course.
Dear friends! If you decide to help Alexander Mikhalchenko, do not be confused by the price of salvation. Any of your donations will be gratefully accepted. You can help by sending SMS SMS - messages UAH 9. with the word GOOD to the number ####. Cost You can send a donation by bank transfer to the Fund. All the necessary details are in the Fund. You can also use our electronic payment system by making a donation from a credit card or electronic cash, including from abroad.
Responded (took details): 1 fund
Helped by: 1 fund
Collected: UAH 29,600
March 26 , 2021 Thanks to the
help of our new friends BF We s pa , sixteen-year -old Sasha Mikhalchenko received the drug avoid risks during . This drug neurosurgery. Paid medicines will be enough for Sasha for two months.
Svetlana, Sasha’s mother, thanks everyone who responded for helping her son! Accept our gratitude, friends! We will definitely follow the fate of the boy.